The ALS Phenomenon; The Ice Bucket Challenge went viral on social media during July–August 2014.
The Ice Bucket Challenge, sometimes called the ALS Ice Bucket Challenge, was an activity involving the dumping of a bucket of ice and water over a person’s head, either by another person or self-administered, to promote awareness of the disease amyotrophic lateral sclerosis (ALS, also known as motor neurone disease and in the US as Lou Gehrig’s disease) and encourage donations to research.
Within 24 hours of being challenged, participants had to record a video of themselves in continuous footage. First, they were to announce their acceptance of the challenge, followed by pouring ice into a bucket of water. Then, the bucket was to be lifted and poured over the participant’s head. Then the participant could nominate a minimum of three other people to participate in the challenge.
Within weeks of the challenge going viral, The New York Times reported that the ALS Association had received $41.8 million in donations from more than 739,000 new donors from July 29 until August 21, more than double the $19.4 million the association received during the year that ended January 31, 2013.
On August 29, the ALS Association announced that their total donations since July 29 had exceeded $100 million.The ALS Association is just one of several ALS-related charities that have benefited from the challenge. However, it was reported that the 2015 challenge had raised $500,000 as compared with the $115 million raised by the 2014 challenge. The final figure was reported by the ALS Association in mid-October as being $1,000,000, with a survey by health analysts Treato showing that only 14% of donors from 2014 donated again in 2015
In July 2015, it was reported on the ALS Association’s summary of how the funds raised through the Ice Bucket Challenge were distributed. By percentage, 67% of all funds (about $77 million) went to research, 20% to patient and community services, 9% to public and professional.
[There might come a point when you ask yourself, who am I really? Am I being real? Am I still the kid my parents think I am? And more importantly, who do I want to be?
The truth is, you’re a lot of things to a lot of people – you’re interesting like that. You can be one thing online and still be kind of different in person. You can be someone to look up to, and know what it feels like to get rejected. You can be righteous in your decisions and still slip up and make mistakes.
But, with so many versions of yourself, it’s easy to forget the one thing that keeps you real – the pure-grade, original first edition of yourself.
The point is, when you reach the moment where you have to ask yourself, who am I really? Press pause. Hit reset. And remember, you’re Above the Influence.]
For Many States and Counties That Place Your Love Ones In Hospice, In-Home Care or Nursing Homes For Those of Age of 55 Years or Over.
While government tax cuts would be awesome, it does come with a negative impact on deficit. You cannot have tax cut without budget cuts.
Minnesota and many other States have passed legislation over the years on State funding for those over the age of 55 whom are in need of long-term care and/or hospice.
While some may be misinformed, that deficit in care through STATE and FEDERAL funded care CURRENTLY MANDATES FAMILIES to pay the STATE back if YOUR LOVE ONE COULDN’T PAY or INSURANCE didn’t cover cost.
THIS implies that your SPOUSE, your CHILDREN, your BROTHERS, SISTERS and PARENTS inherit the BILL, DEFICIT, DEBT of your love one.
The STATE and GOVERNMENT has authority to GARNISH YOUR WAGES to pay off your love ones debt; GARNISH YOUR TAX REBATES, YOUR ASSETS, TAKE YOUR HOME, YOUR CAR, ANYTHING OF VALUE.
Wake Up America, Tax Reform and Repeal and Replace of Healthcare will add more burden to families. Get involved, know your rights and pay attention to legislation written on paper, NOT the news media…
Aristotle Wrote: “All
human actions have one or more of these seven causes: chance, nature,
compulsion, habit, reason, passion and desire”
Spirituality as we know comes in many forms
through core values, exposure, personalization, ethnic, culture, religion,
Spirituality is within a person’s
inner source, intuitive thoughts and how one might perceive things in life.
Elements within a person’s core values may
reflect traditional methods through integration and/or congregation within
one’s own habitat. One may choose to surround themselves in a manner of how one
perceives life’s spiritual values.
Where the wheel spins within ones thoughts
and human behavior, actions form in regards as to how a person responds
to circumstances in life and at times bring more spirituality into life in
such divine ways.
Cause & Effect:
Circumstances within cause and effect may
compellingly choose to respond with or without engaging in some form of
action. Cause and effect may acknowledge its existence in an
underlining source subconsciously.
Through subconscious awareness one
may link in some sort of inner source; connective thoughts lay down a
foundation of complexity placed within itself. Sometimes collective thoughts
may form visions about life, one where most people are better in the abstract
of a mindset formation as to how one wishes things to be.
However disarray may at times mimic a cluster
of personal distress and how one function in everyday life. At times
during emotional distress one might feel as life has become an avalanche.
One where everyday stress may build-and-build
until it all unfolds; pours out in a colossal mess…
Cause and effect through turbulent emotions
may at times linger or fester and lead to explosive reactions when things
to become bothersome.
Someone once said “it comes in a can.” This
implies at times one can become stuck reminiscing, ruminating and over-thinking
situations by setting the stage and making things appears worse than they
really are. This at times this may create problems that were never there to
begin with. Almost as if one were to mix magnesium sulfate with soda to calm a
However, staying in the present moment and
not allowing things to unfold in the heat of moment can lead to more
positive outcomes. But also learning to stay mindful with reminders to not let
things become bothersome and spiral downward by placing defensive reactions out
of an alarming emotional response. Reminders to not to over-think; explaining
the same thing 5 different ways.
Finding balance in life will be the most
beneficial element to achieving respite within. Most of us will spend a
lifetime searching for this. Life doesn’t come with instructions and neither
does balancing our everyday lives. But through our own trial and error we can
adopt readiness guided by willingness to make personal change.
Conditioned to Crisis:
A crisis can condition a person to stray far
from stabilization in any manner within cause and effect, creating an avalanche effect
that may continue to build regardless.
Many individuals at one time or another have
come across circumstances in their lives that sent them on a mission in an
overwhelming emotional state. This doesn’t necessarily change or modify another
person’s elevated emotional state of mind, but rather dysfunction may occur.
One may at times mimic or draw conclusions to
reflect on their own emotional response, conditioned through a belief system
right down to personal and core values.
One may find within their own personal
habitat that their own state of mind may react spontaneously to a crisis mode
(often referred to as a rescue mode).
Perhaps worrisome thoughts have captured an
emotional response and created a downward spiral of emotions flooding in a
state of panic towards one’s spouse, family member or a loved one. In a state
of panic (rescue mode) to rid unwanted emotions or problem solve we sometimes
become compelled in stressful situations to place ourselves in the
driver’s seat of a vehicle, only to find that one is in overdrive with their
foot floored to the gas pedal based in a state of fear to React! Respond! Do
The Impact Effect:
Many individuals at one time or another have
come across circumstances in their lives that sent them on a mission prompted
by emotional state of reaction to current events.
At times current events may have unfolded in
our community or around the world, leaving a reaction of overwhelming emotional
response prompted by chain of events. The cause and effect reactions to how one
may feel about presumable actions or a crisis in current events that may prompt
a reaction within one’s own emotional state of being.
Unfortunately prompted in a crisis mode in
current events we may at times unintentionally create more havoc.
Spirituality in the Making:
Perhaps a loved one has been ill with a
serious medical condition and you find yourself facing fears head on. Maybe
it’s a friend having a difficult time managing his/hers mental health
distress or perhaps it is someone close to you fighting a
drug/alcohol addiction and you feel absolutely powerless to do anything.
In any state of being it can be difficult
to carry someone close to one’s heart who inflicts emotional harm
onto themselves or others, leaving one to be unable to receive a healthier
In some cases where one’s spiritual beliefs
may be in distress and broken down. It can be difficult for a
loved one to comprehend the impact of cause and effect. To learn to set
aside differences because each person is unique to their own core values
when it comes to spirituality.
At times it is necessary to place one’s own
spiritual beliefs aside; to be checked in and left at the front door.
Individuality creates each person to uniquely define their own core values;
their own belief system.
At times ones spiritual beliefs may lead one
to believe notions through spiritual entity to be the only path in such divine
ways. Ultimately by engaging in a sense of notions disagreeable to another may
prompt one to create actions that may do more harm than good.
Most often relationships become much more wholesome when a person can relate on
a more personal level without judgments and lack thereof the use of words
that may hinder a person’s ability to feel validation.
Validation is crucial part of communication
when it comes to a healthier connection, whereas one being empathetic in
comparison isn’t because it may become misguided words.
Things in life aren’t intended to be
all-or-nothing; black-or-white. There are many shades of gray to lay down a
healthy foundation in one’s life.
Spirituality Right Down to the Core:
If I were to use addiction as an example with
someone struggling to find reasons to believe things will get better. Most
often a person’s addiction can spiral into a path of destruction, leaving one’s
self-worth, personal core values to plummet downward.
One’s spirituality may have already been
hindered collectively through emotional duress without the ability to reason
and/or see things differently.
For some spirituality may falter so far that
even an avalanche couldn’t persuade one to find shelter.
“It is often said when it comes to
addictions, mental illness, health conditions one may strive at a bare minimal
in times of struggles. One’s ability to maintain a faction of hope strays far,
just enough to keep a person on solid ground and living moment-by-moment in any
given circumstances where there are shadows of doubts…”
(I often find myself dedicated to the needs of others, especially those on Social Security Disability because in this day and age it is difficult enough to qualify, but just as easy to lose. Therefore I dedicate this article to those with disabilities, friends, family and love ones whom have suffered through hard times.)
“Ticket Back to Work” was designed to help workers who are “permanently and totally disabled,” and administration officials say that it is an important lifeline for many people who simply cannot work at all.
In 1999, Congress passed a law authorizing the Ticket to Work program, which offers beneficiaries practical help with a job search. Social Security may also waive medical reviews for those who participate, but not necessarily in some circumstances.
But Social Security officials can take into consideration a person’s age, skills and ability to retrain when determining eligibility. But the question remains: How many beneficiaries could work, given the right services and workplace accommodations?
It was estimated that at least 18 percent of recipients could work and earn at least the threshold at which benefits are suspended. This would imply the amount of social security per month, not yearly as some may say. Other economists say that even among those denied benefits, a majority fail to go back to work, in part because of medical problems and a lack of marketable skills.
The benefits have no expiration date, unlike the current limit for collecting unemployment. Many people spend years appealing denials and building their medical case before being granted benefits, their skills often lag with gaps open on their resume, making it more difficult for them to get back to work.
Beneficiaries, who also fear losing health care coverage, may view their checks as necessity, next to nothing when receiving just $800 or $900 a month. However this applies to local government as well. Many states have county services for those on social security disability and sometimes these provisions can make finances more plausible when it comes to such impoverish conditions by having a monthly medical spenddown before qualifying for medical subsidies.
Let’s say for the moment your SSDI is $1150.00 a month and you receive notice that your income bracket prevents you from getting the necessary medical treatment you require, but rather one would have acquired a monthly $600.00 medical spenddown before qualifying for medical subsidies. This would leave a person $550.00 a month for rent, mortgage, living expense, food and necessities required to survive.
However a person may have opportunities to wave these spenddowns if they were to return or find employment. In many cases those on SSDI would qualify for other subsidies or medical premiums programs.
It is said Social Security offers disability beneficiaries some incentive to ease back into the work force. For nine months after starting a job, they can earn any amount without threatening their benefits and possibly another three years or longer if their income falls below what a person receives in entitlement, with the possibility of keeping their Medicare coverage after going back to work.
Some say Social Security could make this program exponentially more successful but it wouldn’t be enough to dramatically improve the solvency; as many quoted “in one’s mind something’s appear better in the abstract” or perhaps they do it because work for some people gives them dignity and improve their economic condition.”
When a person’s claim comes up for a continuing disability review (CDR), which eventually it will, depending on the type of illness you have and thelikelihood of recovery, you will be sent either a short-form or a long-form to complete and send back. Both ask about your current medical condition, your recent medical treatment, and any work activity. One goes into more detail than the other. If you receive a short-form and you have been working, you may be sent a long-form as a follow up. With either you could have benefits continued or be found to have recovered. If you are only able to work a few hours a week with low earnings, the work may not trigger an early CDR, but of course there are no guarantees.
Someone once asked “I was sent a cessation of benefits. I appealed it and requested that my benefits continue. While waiting for the appeal hearing I received calls from ticket to work providers. I started an IEP with a provider and was told this will stop the process of the appeal. I recently received a letter that my hearing will be within 20 days. Lawyers that I have contacted won’t represent me because am already receiving benefits so they can’t get paid. All I want is to finish my IEP and have the trial work period after I complete it. I’m nervous of starting a full time job without the cushion of my benefits if something happens.”
If you have not already reviewed your claim file and there is still time, it could be good to request the file and review it before a hearing to be sure that all important records are in file.
Regardless of whether you decide to work part-time, you do need to continue under the care of a physician appropriate to your condition because at some point you will have to prove continuing disability. A record of your actual condition will be more important than the doctor’s opinion. You could also consider having a copy of your past medical records to your new doctors so they have your medical background.
If a person’s medical review is initiated, presumably Social Security is then able to finish the review since it had already begun prior to beginning the program. Hypothetically if Social Security finds that you are no longer disabled or medically improved, but you had already started the Ticket to Work program prior to them reaching a decision, does that mean you can ask to finish the program and still receive benefits and Medicare in the interim? The hope being that you can still use the program to find work before benefits are withdrawn.
Social Security is likely to complete a review if the claim is close to due. A person’s Ticket to Work may also terminate; however, if you had already started a vocational rehabilitation program you might be able to continue it or maybe even start one. The Ticket to Work sets up vocational services through your state’s Department of Vocational Rehabilitation. If a person were already connected to the state and receiving vocational services or being set up to, the state might allow one to continue.
When Medicare stops, one may be eligible for sixty-day personal enrollment period under the Affordable Care Act, where you may be able to get benefits with a government-subsidy to help with premiums.
However this leads me back to sustainability; employment that is attainable
Having written many articles on Recruitment Agencies and why agencies are seldom attainable income for those especially on SSDI. it would be vital to do research before engaging in options through an agency. Know your rights, be vigilant when it comes to protecting your SSDI. paperback)
Clearly statistics show unemployment rates have fallen but in this book one will discover as to why more people don’t qualify for unemployment, how being employed by recruitment agencies factors into these problematic flaws.
You’ll find written content regarding people with disabilities whom are losing their SSDI due to being employed by recruitment agencies without understanding certain criteria and/or facts on how “Ticket Back to Work Program” works for those on disability; a flawed system that leaves many prone to potential loss and vulnerabilities.
As ironic as it may seem many are referred to recruitment agencies by government unemployment agencies and/or vocational rehabilitation representation with little or no information on their “Ticket Back to Work Program” status and how it works. The downfall of basic knowledge within recruitment agencies leaves many with disabilities blindsided when referred to recruitment agencies. After all there are no guarantees for permanent job placements as many are told employment opportunities are possible temp to hire with merely the most plausible explanations of potential hire along with a collection of disclaimers and contracts to sign.
Sustainability; attainable stability and financial security must be achieved for one to be successful on “Ticket Back to Work Program” and this is seldom found through recruitment agencies.
(This book is currently unavailable while data and written content is updated)
Written by Marsha Beede
All right reserved under copyright infringement law.